| Location | Chester |
| Age | 1 month |
| Date of Birth | 6/2005 |
| Date of Death | 7/2005 |
| Visitors | 6,455 since 12/10/2007 |
| Creator |
Heather Angel Thompson-Guest,
5th July 2005
17 days,
Angel
Chester
Two brothers, Joseph and Heath,
Diagnosed with NKH, rare metabolic disease at 14 days old, passed away at home with Mummy and Daddy
Heather was a blessing for all my family, we held hands and had cuddles. She is the most beautiful person i have ever seen and i am so lucky to be her Mummy.
She was perfect in everyway a parent could wish for, she just couldn't wake up.
I would sing Twinkle Twinkle Little Star to her in hospital and read her a bedtime story every night in ICU.
Heather has a beautiful angel headstone in red pink granite with her photograph on. We played songs at her funeral which we danced with her to at home. They are 'Snowy White' 'Bird of Paradise, and 'The Pretenders 'Hymn to Her'. Heather gave us so much. Thank you my love. x x x x x x x x x x x x x x x x
Heather's Story
Heather Angel Thompson - Guest was born by planned c-section on 17th June 2005. As they took her out all i could see was a screen, and yet her daddy, Ewan watched the whole thing. He turned to me with the brightest smile i've ever seen, through tears, and said 'she's perfect'. He kissed me and told me how wonderful i was and how proud he was of me. That moment now plays through my head like a movie clip several times a day, a beautiful moment captured in my memory.
We had visitors and celebrated. Heather was asleep and seemed very content. She did't want to feed but the nurses said that can happen with c-section deliveries.
That night i was worried and couldn't get the nurses to listen, any mother on those cestrian wards will know how 'old style matron' their approach can be. One nurse commented on how i should be glad of the sleep as i would have many sleepless nights to come. I just wanted to feed my baby.
The next day Ewan came to visit and i fell asleep with him trying to bottle feed Heather. When i woke up he said he really wasn't happy she was so sleepy and wanted a doctor to look at her. Nusres tried holding her under a fan naked - but she just had a wee on daddy! Some tried dripping water on her cheeks. A doctor then came. He had Heather sent down to ICU. That was the last time i held her thinking i had a healthy baby,without the tubes attached.
Over night she was ventilated. They thought she had a rare genetic disorder SMA but unsure, we were sent to Alder Hey. We had her baptised before she went. I had to be on the ward with the other mum's that night listening to their baby's cry - i truly felt insane.
We went to Liverpool on Monday, Heather was three days old. They changed her breathing equipment, got her having milk again and asked me to change and feed her. I was so excited and frightened at the same time. It was like they were giving her back just when i thought i had lost her.
Ewan and i decided not to give up and spent two wonderful but difficult weeks being her mummy and daddy, with her big brother Joe coming to visit. We watched her tests everyday, all that she went through, so very very brave. We lost track on how many things they actually tested for, but near the bottom of the list, on Friday 1st July, my mum and dad's wedding anniversary, we got the diagnosis, NKH, non-ketotic hyperglycineamia, a rare genetic disorder causing severe disability, mentally and physically.
On Monday 4th July, her Uncle James' birthday we brought her home via ambulance to be with me and Ewan. She breathed for 17 hours off the ventilator, and passed away in my arms on 5th July 2005. She looked like a porcelain Angel. We sat and watched the sun rise.
We spent two days choosing her songs and dancing, sleeping and having cuddles with Heather. For us she was always so quiet and sleepy.
I held Heather in the funeral car, sat next to Joe and Ewan. My mum and Dad came with us. That is the last time i held my Angel.
The funeral was actually very beautiful, just a handful of family. Afterwards i went home and fell asleep, numb. It was 7th July 2005. I awoke to the sound of the news reporting bombing and disaster. It was truly a solemn day.
I now know that only one child every year is born in the uk with nkh, Ewan and I are both carriers. We always knew we were special together and are very alike, it seems in more ways than we knew.
Heather's story continues in our hearts and thoughts every day and she will always be our beautiful daughter. As Ewan said at the funeral 'I would like to thank Heather for showing Nikki and I that are love for each other runs deeper than ever imagined, thank you sweetheart.'
Heather's headstone reads, as her song, 'something was found' and thats how we try to think of her whenever the hurt and pain takes over. I loved having Heather in my arms even if it was for so much shorter than i wanted, but i would not take a second back, and am thankful that i got to have, know and love her at all.
Sweet dreams my Angel.
Mummy x
When i was in ICU with Heather i watched her sleeping whilst we waited two weeks for a diagnosis. I kept a diary evaeryday for her. One day as i watched her sleep i wrote her a poem. Ewan read my poem at Heather's funeral. Ewan and I would pray together in the Chapel and would look the window in their, a beautiful glass window with a dove, which we imagined was Heather.
Heather, here once more is mummy's poem for you:
Sweet Angel of Peace and Calm,
My bird of paradise trapped within the storm,
Help us know how to save you from harm,
Its time to take your natural form.
I pray you wake, to us return,
Each day sews us tighter together,
My body and mind for you do yearn,
I promise i'll love you forever.
You are the innocence within the madness,
Of how cruel this world can be,
Please come and take away the sadness,
And return my sweet Heather to me.
(****)♥(****)♥(****)♥(****)♥(****)♥(****)
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-{*~*~*~*~*~*HAPPY~*~*~*~*~*~}
-{~*~*~*~BIRTHDAY*~*~*~*~*~*~}
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(****)♥(****)♥(****)♥(****)♥(****)♥(****) HAPPY BIRTHDAY HEATHER
WITH ALL OUR LOVE ALWAYS AUNTIE KEL,UNCLE STEW AND GIRLS XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
The tiny rosebud God picked to bloom in Heaven.
The master gardener from heaven above
Planted a seed in the garden of Love,
And from it there grew a rosebud small
That never had time to open at all.
For God in his perfect and all-wise way
Chose this rose for his heavenly bouquet,
And great was the joy of this tiny rose
To be the one our Father chose
To leave earth’s garden
For one on high
where roses bloom always and never die.
So, while you can’t see your precious rose bloom,
You know the great gardener from the upper room
Is watching and tending this wee rose with care,
Tenderly touching each petal so fair.
So think of your darling with the angels above,
Secure and contented and surrounded with love,
And remember God blessed and enriched your lives too,
For in dying your darling brought heaven closer to you.
Helen Steiner Rice
happy valentines day
____*hug*___*hug*__ __*h ug*___*hug*____
___*hug*______*hug*_ *hug*_______*hug*__
__*hug*__________*hu g*__________*hug*__
__*hug*_____________ ___________*hug*___
___*hug*_________ ________*hug*____
____*hug____________ _________*hug*_____
______*hug*_________ _______*hug*_______
________*hug*_______ _____*hug*_________
__________*hug*_____ ___*hug*___________
_____*hug*___*hug*__ __*hug*___*hug*____
___*hug*______*hug*_ *hug*_______*hug*__
__*hug*__________*hu g*__________*hug*__
__*hug*_____________ ___________*hug*___
___*hug*_______THINK ING________*hug*____
____*hug________OF YOU ________hug*_____
______*hug*_________ ________*hug*______
________*hug*_______ ______*hug*________
__________*hug*_____ ____*hug*___________
___________*hug*____ ___*hug*____________
____________*hug*___ __*hug*___________
_____________*hug*__ _*hug*___________
______________*hug*_ *hug*_____________
_________________*hu g*_______________
love christina and family
with us always.
if you cant hold my hand,
hold me close.
if you cant hold me tight,
hold me dear.
if you cant hold my gaze,
hold me in your heart.
if you cant see my smile,
see my soul.
if you cant see my eyes,
see me watching over you.
if you cant see my face,
see me in your dreams.
if you cant hear my voice,
hear my whisper in the wind.
if you cant hear my laugh,
hear the laugh of those you love.
if you cant hear my thoughts,
know im thinking of you,
know im watching over you,
know im holding you in my heart.
So proud of you both :) x
This message is from Heather for her aunties Michelle and Hannah, for raising lots of money to help the other nkh angel babies. Thankyou. Aunty Shell, i know we did not hold each other on earth but we hold each other in our hearts. I love you both. Heather x x
Hope for NKH in memory of Heather Angel Thompson-Guest
Dearest Heather, I'm writing this the night before I do my run for NKH. I've never done anything like this before and am a little bit nervous. Thinking of you always, especially tommorrow. I know you will be with auntie Hannah and I, helping us cross the finish line. Love you and miss you, wish I could have held you, auntie Michelle x
CONGRATULATIONS
CONGRATULATIONS TP YOU BOTH ON YOUR WEDDING I AM SURE HEATHER WAS STANDING RIGHT BY YOU BOTH AS YOU SAID YOUR VOWS SHE IS ALWAYS WITH YOU ALL I CAN SLMOST HEAR HER GIGGLING XXXX GOD BLESS YOU BOTH AND YOUR BEAUTIFUL ANGEL XXXX
Nikki, Ewan, Joseph & Heath - I found this poem and though of you:
Pennies from Heaven
by Charles Mashburn
I found a penny today
Just laying on the ground
But it’s not just a penny
This little coin I’ve found
Found pennies come from heaven
That’s what my Grandpa told me
He said angels toss them down
Oh, how I loved that story
He said when an angel misses you
They toss a penny down
Sometimes just to cheer you up
Make a smile out of your frown
So don’t pass by that penny
When you’re feeling blue
It may be a penny from heaven
That an angel’s tossed to you.
Death leaves a heartache no one can heal,
love leaves a memory no one can steal
we all think of you all the time sweetie,
stay with mummy and daddy in there dreams.
a letter to an angel
dearest angel,
i sit here writing to you now
with a heart so filled with love
i wonder how you've been
in your playground up above
we miss you down here
where grief and stress can rule
but knowing you are happy
it helps us keep our cool
your tiny hands touched many hearts
your little face lit lives
and though we hold your hand no more
we know your by our sides
i ask you angel to stand by us
especialy those in need
for though your flower grows no more
in gods garden there are many seeds
shine your light to all that grows
and help us to realize
that although sometimes we shrink from life
its our hearts that grow in size
i post this letter not in the mail
but in the heart instead
to let all read it, not just you
and so your always in our heads
i leave you now with lots of love
and many kisses too
from mummy, daddy, aunt and uncle
and from your loving brothers too
my eternal love to you heather angel.
stay safe and warm.
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